Sunday, February 4, 2018

On Eagles and Wings....

Super Bowl Sunday.  AND the anniversary of the transplant.  Six years.

I watched Babygirl fill her pill sorters last night, just part of our weekly routine now.  "Is iron once or twice a day?"  Geeze, girl!  get it straight! Twice, and multivitamins, once.

It IS confusing.  The true majority of her medications at this point are "nutraceuticals."  Supplements to help support her kidney function, fill in nutritional gaps, and decrease (theoretically) headache frequency.  And since these aren't prescriptions, they aren't labeled as to daily dose.  They're expensive, too, but I've discovered I can get about a years' worth on Amazon Prime for the same as it would cost at Walmart for about 4 months, so...

It's routine.  Normal.  Keeping an eye out for food recalls that could be dangerous to her.  Being vigilant about preparing food at home, and kitchen cleanliness.  Expecting to spend $200 or more every time we walk into the pharmacy.  It is what it is.  And it is, overall, good.

Her last kidney studies were excellent, her anemia is minimal, but there is one nagging little study that indicates that something in the background isn't working quite as it should be. They're trying to mend it with Vitamin D (yes, really. It does matter - keep your levels UP.).

But today will be for relaxing.  We will watch the game, rooting for the Eagles (hey! We spend a LOT of time in Philly! If my home-town Bills don't get there, it's next-best, okay?), and eating chicken wings (no Blue Cheese for Babygirl - there's mold on that cheese so she can NEVER have it) and other unhealthy treats and playing out new family game:  "Donner Dinner Party."

It's as good as it gets.  I'm intensely grateful.

DeeDee

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