Saturday, August 31, 2019

Letting Go......

Babygirl had her last pediatric neurology appointment two days ago, and her first adult neurology appointment two weeks ago.  The peculiar overlap had to do with realizing that we don't need an adult Ubercenter for her headaches, so being turned down by the specialists in Rochester was enlightening and relieving (once I had time to process the idea that there is some area of her health that is no longer so "special" that a local doctor can't manage it).  Meeting the new doctor before saying goodbye to the current one was also reassuring from a purely personal standpoint:  Babygirl and I both like his style of communication, and is feels comfortable. It makes letting go of the amazing nurse practitioner we've been seeing for 3 1/2 years a just a little easier.

We haven't frequently talked about A.I. DuPont/Nemours Children's Hospital, but since we left CHOP neurology (Snapped.....), our specialist there has been nothing but amazing. She has been patient, communicative, aggressive, and effective.  Although Babygirl still has headaches, she has them infrequently and manageably. In other words, she has migraines, but the migraines don't have her.

So although CHOP saved her life, Nemours saved her quality of life, and that is no small thing at all.


Why do you take your kid so far away for her health care? People ask this all the time.

Because you gotta do what you gotta do. This was 24 miles further down the road from where we were already going. I'm grateful that we could do it. So grateful.

DeeDee

1 comment:

  1. Nice blog. Here I observed an experience of a baby girl on how she suffered with a Kidney disease and how CHOP saved her life. Thanks for sharing the information. Along with this article I always recommended Springdale clinic to get instruction on mental health issues.

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