February Eighth and Ninth - Life is Better......

Yesterday all her numbers stabilized.  Medication doses are still being adjusted. One of her meds is very food dependent, so we need to make sure she is eating consistently before each dose. 

I've been maintaining my sanity by trying to get in at least five hikes up and down the forty-eight Atrium steps each day.  Yup.  One before and after breakfast, one before and after lunch, and at least one other random trip.  I can now get up from a squat without any problem LOL.

Yesterday the hospital hosted a Pajama Party in the Atrium.  Babygirl made a fleece pillow, and a friendship bracelet (I made one too!).  She's been up and about, not happy about wearing a mask when off the floor, but adjusting.  The prednisone is not making her cranky, but she is HYPER and she's eating about six meals a day.  Breakfast today was: a bacon/cheese omelet, chocolate chip pancakes, cinnamon-raisin bagel with cream cheese, apple juice, coffee and a popsicle.  Since then we have been to the coffee shop for a muffin and more coffee.  And we will order lunch in about a minute.

Later today, Andy Grammer will be in the Atrium for an interview on the hospital's radio station.  And later still, "Sam" and "Emily" from Twilight: Breaking Dawn will also be here - pretty exciting stuff!  I am truly impressed by how many stars are willing to put in a free visit to a children's hospital when they are in town.  Selena Gomez has been here twice, apparently.

But the best news of all??? We are being discharged tomorrow, less than a full week since we arrived. The nurses tell us that Babygirl has set the bar high for all other transplant recipients.  She is tolerating the meds, not taking anything for pain in the daytime, and overall continuing to maintain her "healthiest sick kid you'll ever see" rep.

I cannot, in any words, express my gratitude to Children's Hospital of Philadelphia and their excellent staff.  And I am unable to thank the hundreds, maybe thousands of prayer warriors who have "stood in the gap" for my baby.  But more than anything, I give my undying thanks to her donor and her family, for making the sacrifice that made all this possible.

DeeDee