Friday, January 7, 2022

Conflicting Disease States....

 So here we are. 

Babygirl was definitively NOT Covid positive on arrival to the hospital.  She is Covid positive now.  So this is how this falls out:

Her kidney rejection is T-cell mediated (the same cells that are murdered by HIV/AIDS, and the same ones that remember you've already had chicken pox so you don't typically have to fight it twice). In plain English, her T-cells have noticed that the kidney doesn't belong to her and needs to die. Her T-cells are succeeding. If not stopped, the kidney WILL probably die.

On the flip side, her T-cells are the most effective line of defense against her Covid infection.  She needs them to function, to remember her immunizations, and to fight.

So anything they give her to fight rejection will accelerate what is currently a mild Covid infection, which in her state of immune compromise and overall poor health at the moment, could prove devastating.  

Since she can do dialysis for the kidney failure, and they can't fix Covid if it runs amok, they are treating the Covid and letting the kidney fend for itself for the most part. They acknowledge what little they can do to support the kidney is likely to fail.

To answer the question already asked by a few: Again, no, we can't "put her on a list." She has to complete this illness, and see if there is any remaining kidney function. As a look-ahead, they are already checking out local long-term dialysis availability in our neighborhood. If it is determined that the kidney will not recover, we can talk "lists."

I will be leaving for home tomorrow morning. I can't visit her, and under the circumstances, need Covid testing of my own, which has already been scheduled. I will return at ANY time if needed, and when they allow me back in to see her. 

I dropped some things off for her today, and they were angry that I was "walking the halls" when I have such personal risk.  Sorry. Babygirl NEEDS those headphones.

DeeDee

PS And pretty please, y'all, before you ask a question, think about whether or not you'd want to hear it if your kid was desperately ill.  The worst so far is a record-breaking, "Is she a DNR?" Please be gentle with my sorely bruised soul.

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