I Want Coffee....

 For a very long time after her last transplant failed almost 18 months ago, Babygirl has had issues with how things taste and what she wants to eat, and some general overall poor appetite.  One of the things she has not tolerated well has been coffee, a daily staple since she was 2 (she's from Guatemala. She CAME to us addicted to coffee).  Even the AMAZING coffee at the Farmers' Market was dicey. She'd ask for half a cup and throw most of it away.

But for yesterday and today at least, she's ordering coffee or decaf with her meals, and iced coffee today, and generally finishing it.  The numbers on her new kidney still suck overall, but she is peeing a lot more.  Call me crazy, but I find it reassuring that some of her pre-kidney failure taste is returning.

We will most likely be heading home tomorrow.  They are pulling her catheter at midnight.  Why midnight, you might ask (because I certainly did)? Because it takes a few hours to fill a bladder, and if she is going to have a problem with clots or spasms or poor emptying they'd rather she have to deal with it in the morning rather than the middle of the night. Sometimes the odd things doctors do make a peculiar sort of sense.

We have to return on Tuesday, and again on Thursday.  I need to spend at least part of my day tomorrow updating those leaves with FMLA.  I also would like to ask her primary doctor if she needs to do any blood work for him. She's due to see him in July, so he might want updates on the stuff he manages, like her blood sugar and cholesterol (although I think endocrinology is on board for the time being as well as nephrology and urology).

My gratitude to the people who have stuffed our UberEats and Venmo with cash so she can order whatever-the-duck she wants to eat while we get the house reorganized. 

My eternal love and gratitude to all of you for your support, prayers, kind thoughts and good wishes.

DeeDee 

PS I'm leaving the laptop with Babygirl for the night so she can watch endless anime.  She was also watching a video of an very elderly RBG doing PT.  It's amazing what is online, and what catches her interest.