We left this morning at 6 AM for our second trip to Rochester this week. Her appointment was at 11, labs to be done first (which takes about 1.5 hours due to staffing shortages). Babygirl's bladder has not had very much to do for the last 18 months, so now that she is producing large amounts of urine, she has to pee every hour until her bladder stretches out some. Taking all of that together, allowing 3 hours for travel and breaks and granting additional in case of more than usual glitches in the lab, we planned to arrive around 9. Monday's appointment was at 10. We went the night before and stayed in a hotel for that one.
Travel was pretty efficient and the lab fairly timely, so we had time to take a (smoky!) walk in the big cemetery across from the hospital. We spotted a pretty good sized pyramid in the distance (I assume a mausoleum) so that's our target for the next walk.
The visit went quickly. The doctor sent a message to urology to tell them to cancel the (to him and us) unnecessary extra appointment in 2 weeks. Why do they need to see her twice in 3 days? He discontinued her water pills since she has lost all but 4 of the 60 pounds of extra fluid the transplant gave her. He increased an antiviral since her kidney is functioning well enough to remove it.
We got her most recent lab results: Anemia is improving (showing good long-term function of the kidney) and creatinine is down to 1.7 (from 7 or 8 after the kidney went in). Yippee! The kidney, while not functioning perfectly, is officially awake.
We did some exploration of the Erie Canal on the way home, and had dinner at all-you-can-eat crab night at the local casino.
We arrived home at 8.
I am too old for 14 hours of travel in one day. Even if it's a GOOD day.
DeeDee
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